Participation in biobank research
Participation in biobank research is voluntary
Donating samples to a biobank is voluntary. A request to donate samples for biobank research can come in a variety of ways. For example, in population studies a person can receive an invitation letter in the mail. During a hospital visit, a patient can be asked whether he or she would be interested in donating his or her samples, such as a small piece of tissue from a biopsy or excess blood taken at the laboratory visit, to the hospital’s biobank.
The potential sample donors will receive detailed information about biobank research and data privacy issues, after which they can decide whether to donate their samples. Sample donors can also at any time withdraw their consent and prohibit further use of their samples. Samples collected prior to September 1 2013, by hospitals or in research projects, can also be transferred to the biobank. The transfer of old samples requires the assent of the Regional Ethics Committee, as well as the sample donor’s consent.